Saturday, 28 March 2020

KNOCK! KNOCK!


“Crisis and deadlocks when they occur have at least this advantage, they force us to think.” Jawaharlal Nehru

Exploding the myth of the scientific vs artistic mindSo Covid-19 is finally in Africa. It was not that we were not anticipating it but rather it was just a matter of when. With increasing Covid -19  incidence rates, it then creates an opportunity to examine our health systems and, unfortunately, the more I think of it the more apprehensive I am of all this. You see first world countries are struggling with this pandemic what about us who have the bare minimum to curb the diseases we already face. What are the preexisting gaps? What can we learn from this pandemic and previous pandemics and finally how can we use the resources we have to prepare ourselves in the event of forthcoming scenarios. These are some of the questions I have been asking myself.

The data era is shifting: From creation to storage to readinessAccording to W.H.O(2020), the total global number of COVID-19 cases has surpassed 500 000 and is still expected to keep on rising in the next couple of weeks. However, what is not being said is that with most previous pandemics incidence rates are often of similar numbers if not worse. With such numbers, there is a greater likelihood for health systems to be overwhelmed. Globally, the shortage of health workers has been termed as a crisis. In our continent, this is often as a result of:


  • The unattractiveness of the programs. They involve extensive coursework and when the returns come in, it takes several years and a lot o good luck for one to live comfortably unlike in some professions. Predominantly true for nurses.
  • Immigration to better-paying continents. In the past four years, one can account for at least four health workers who have relocated abroad.
  • The ambiguity of our roles in our home countries. The scope of practice within our set up is limited and a lot of medical hegemony preexists.
  • Lack of provision of our basic items. Anyone working in the public healthcare systems in most African countries such as Kenya always complains of inadequate resources such as personal protective gear and hospital utilities.
  • Health workers are among the groups that face the greatest numbers of levels of burn out.  To obtain more information on the above you may follow the link below. https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-019-7566-7

Library of recommendation clip art free stock png files ...With the above stated we now understand how pandemics amplify the issues in our health systems. So then what can we learn from this pandemic and previous pandemics?

1.To our leaders

  • Use it as a future reference point in advocating for increased allocation of monetary funds towards emergencies, healthcare, water and sanitation, and special needs groups. This would help cushion our economies in times such as this when we will soon be facing a global recession. 
  • Have more healthcare workers who are actively participating in decision-making levels. I have to insist they should be people who have extensively worked within the clinical set up then transitioned to leadership and management. Most of our current policies and strategies do not work because there is a disconnect among those who generate them and those who should apply them.
  • Stop being greedy. It is unfortunate we are bearing the brunt for misappropriated funds. Pandemics offer a great lesson on self-reflection because with our poorly managed health systems and a global crisis there is nowhere for even the leaders to run and hide. The same issues facing the public hospitals will soon be facing the private healthcare.
  • Collaborative interactions in different sectors.


2.To all health workers


  • Curb medical hegemony. The nature of functional working relationships in healthcare is often a point of concern. With supremacy battles, day in day out we tend to forget the core of our call which is health maintenance, health promotion, and disease prevention. This then leads to the medicalization of every intervention whilst at times all we need to do is educate our patients on practices as simple as, adopting basic hand hygiene, better waste disposal, and safe food preparation. We have forgotten that improved economic power does not directly correlate with these practices.
  • Work strategically to enhance ourselves to be in positions where we can at least try to implement and effect appropriate change. The moment we take a back seat on issues that directly affect healthcare then we place ourselves at risk. For instance, during this current pandemic, On the 11th of March Italy, among the hardest-hit regions globally had approximately 2,629 infected health care workers and with their very high death rates, we can only assume that it is just as high among the infected health workers. Now translate that to Africa. 
  • Re-evaluate our curriculums. Do we feel very prepared by the end of our academic journey? During pandemics it offers an opportunity to assess our proficiency, efficiency, and innovativeness. What can we do with what we have while trying to save as many lives as possible? Are we capable of it? Some suggestions would be the provision of telehealth this maybe consultation, counseling services, etc.
  • Seek counseling, during and after the crisis. It is already very overwhelming. It may actually get way worse before it gets better. We need an outlet for all we are currently feeling if we are to be effective at our jobs.

3. To all of us
In all pandemics  basic principles that always work are;

  • Learn how it is being spread and put measures to mitigate that as per the causative agent.
  • Always keep a travel diary noting areas visited. Record your health status pre and post.
  • Work towards improving your immunity and health status. It may not prevent you from getting ill but it provides a better opportunity on surviving.
  • Practice saving no matter how little it comes in handy when one needs to make emergency purchases
  • Always adhere to the basic principles of hand hygiene, cough etiquette, proper waste disposal, and food safety.
  • Be humane, not everyone has the economic power to purchase in bulk so do not forget to help those in need at such times. 
To read more on previous pandemics please follow the links below



In conclusion, as we try to overcome this current threat lets ponder on one of the many great quotes by Aristotle.

"A smooth sea never made a skillful sailor; we learn greatly from the storms in our lives and what we already know finally comes in useful."

Saturday, 21 March 2020

INSIDE VOICES PLEASE PART 1

Image result for dignity in death quotes"How we care for the dying is an indicator of how we care for all sick and vulnerable people. It is a measure of society as a whole and it is a litmus test for health and social care services"(DOH 2008).

Image result for handliying a dying patientHave you recently handled a dying patient? Did you offer them the care they deserved? How do you feel about it? Did you have the resources to do what is right? Does your institution provide problem-based care or patient-oriented care?  I recently had to take a video of a dying patient for his family as a final request. He had flown into the country sometime back and unfortunately, got critically ill. He had traveled unaccompanied and tracing his family was quite cumbersome. He then ended up on treatment failure and by the time his family was contacted it was almost too late. To help them cope his father requested for a video as he tried to figure out on a way to disclose the information to the rest of his family back in their homeland. He was too heartbroken to physically see him and I felt for him. Imagine being in his situation. How strong are you to handle such events? My next blog post will be highlighting this, however, for today I wish to discuss palliative care, advance care directives and goal-directed healthcare.


Image result for palliative care imageAccording to the World health organization(2019), palliative care refers to an" approach that improves the quality of life of patients and their families facing the problem associated with a life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual."
For adults it ;

  1. provides relief from pain and other distressing symptoms;
  2. affirms life and regards dying as a normal process;
  3. intends neither to hasten or postpone death;
  4. integrates the psychological and spiritual aspects of patient care;
  5. offers a support system to help patients live as actively as possible until death;
  6. offers a support system to help the family cope during the patients' illness and in their own bereavement;
  7. uses a team approach to address the needs of patients and their families, including bereavement counseling, if indicated;
  8. will enhance the quality of life, and may also positively influence the course of illness;
  9. is applicable early in the course of illness, in conjunction with other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.
For the pediatric definition of the same please follow the link https://www.who.int/cancer/palliative/definition/en/.


Image result for palliative versus hospiceWe often assume that it is such a foreign concept in our African set up yet we have been applying it unknowingly for many years. For instance how often do we allow for the religious leaders to pray for the very sick in our workstations? Palliative care should begin at diagnosis, it involves a multidisciplinary approach that is directed to the patient and family. It is distinguished from hospice care in that hospice care involves providing care for a person with a terminal illness whom doctors believe he or she has 6 months or less to live if the illness runs its natural course. Attempts to cure the illness are terminated in hospice care. The main goals here are to relieve pain while promoting comfort physically and psychologically.


Image result for barriers and facilitatorsIn both palliative and hospice care, goal-directed healthcare is important for\
  1. It improves patient care outcomes by directing focus on care and not problem-solving.
  2.  It increases patient and family satisfaction by generating increased value of patients' preferences and opinions.
  3. It is cost-saving to the patient, family, and institutions through the reduction of unnecessary interventions at the end of life, it reduces insurance premiums and reduces the practice of defensive medicine.
 Follow the link for more information on this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5360382/.

Image result for advance care directivesAdvance care directives refer to a formal representation of the discussed health care goals. They are necessary for they help communicate one's desires in the event one becomes incapable of consenting to or refusing treatment or other care. In the generation of these goals, the following ethical principles should be maintained

  1. Autonomy – people have the right to control what happens to their bodies.
  2. Beneficence – do the most good for the patient in every situation.
  3. Nonmaleficence – first “do no harm” is the bedrock of medical ethics, in every situation.
  4. Justice –  try to be as fair as possible when offering treatment to patients and allocating scarce medical resources.

Benefits of  ACD include;

  • Ensures self-determination and an increase in quality of life near the end of life.
  •  Research shows it decreases emotional conflict.
  • When patients’ desires are met, patients, their loved ones and clinicians have peace of mind.
  • There is reduced stress, anxiety and depression for surviving relatives and advocates.
  •  Advance directives and advance care planning facilitate communication.
Please follow the link for more information http://kehpca.org/advance-care-planning-in-kenya-starting-the-conversation/.

Barriers to implementing goal-directed care include

  • General practitioners characteristics 
  • Perceived patient characteristics -Some studies show that patients with a more defined disease course are more likely to vouch for goal-directed healthcare.
  •  Health care system characteristics -Is it problem-based or patient-centered.
  •  Lack of skills to deal if one is not enlightened in this they will not be in a position to initiate the conversation.
  • Vague requests -
  • Difficulties with defining the right moment -This is primarily true for health conditions that have an acute onset and have a poor prognosis.
  • The attitude that patients should initiate ACP
  • Fear of depriving them of hope- For some people, the discussion of death still alludes to "wishing of sudden death".
In light of this information, what role should we play in the end of life care for patients? Our role should be simple. We should aim to provide care that is modified and unique to each patient's and family needs while being empathetic, safe and caring. We should always seek to advocate for the same where we feel it is not being practiced and this will only happen by initiating the difficult conversations.
For continued enlightenment in these topics please follow the links below;

As we aim to create a more humane health system we should seek to remember that
Image result for death with dignity quotes

Friday, 13 March 2020

THE ELEPHANT IN THE ROOM

Image result for patient prejudice quotesHave you recently gone to care for a patient, then you introduced yourself then they went on to ask for your ethic name and a comment like"but you don't look like them," follows. Or you are busy triaging, then the question of what kind of doctors do you have crops up. Or those who are more specific and say "I want a Somali doctor or I want an Asian doctor they are the only ones who provide good care."Or someone blatantly asks you, "so what is your ethnic background" all while you are providing care and makes a very bigoted comment. Or yet still, maybe you were working with a doctor on how best to attend to a patient and the family says something like" no! we need a real doctor someone who is older, not this young fellow who is an intern."  Or my best, "you are too young to be working and are you even sure you know what you are doing."If you have experienced this I would wish to discuss how you handled it for I feel we often dismiss it but it creates a detrimental work environment.

Image result for literature reviewA literature review conducted on several databases including PUBMED, HINARI, Google Scholar, Medscape, and NCBI reveals one thing, more needs to be done. There is little to no data on bias directed to health workers by patients yet a lot of studies have been conducted on health workers' biases towards patients. Does it mean that we have become so comfortable accomodating this behavior that it is part of the norm?

Image result for stand outI chose to join the minority and actually voice it. Most of the journals available proved that it is quite a common phenomenon and unfortunately little has been done by most organizations to curb it. This is sad because such remarks then raise questions on how we should think of race, ethnicity, health, and individual autonomy. With the patients' right to medical care and the unspoken rule of complying with patients' preferences (let us be honest it happens quite often) how then do we reconcile patients' autonomy and accepted levels of ethnic, gender and religious equality. Please review the following article to see how it prompted such thoughts;
https://heinonline.org/HOL/LandingPage?handle=hein.journals/uclalr60&div=13&id=&page=.
try comparing how this article raises questions on issues that we as a country fail to even address in our current health bill. this is despite us being a middle-income country interacting with people from all over the world and facing these challenges daily. Where are we failing? Is it in failure to participate in the generation of policies that govern us as health workers. Please share your thoughts I am quite interested to hear from you?
Please find a sample of the journal links
https://journalofethics.ama-assn.org/article/how-should-organizations-support-trainees-face-patient-bias/2019-06?Effort%2BCode=FBB007
https://www.shrm.org/resourcesandtools/hr-topics/behavioral-competencies/global-and-cultural-effectiveness/pages/metoo-sparks-bill-to-stop-culture-of-silence-in-workplaces.aspx
https://www.statnews.com/2017/10/18/patient-prejudice-wounds-doctors/
http://kenyalaw.org/kl/fileadmin/pdfdownloads/Acts/HealthActNo.21of2017.pdf.

Basis of bias

Image result for biasA Medscape survey done in 2017, showed that among consumers who participated in the study their choice of health worker preference was linked to ;

  • Sexual orientation (11%)
  • Ethnicity (8%)
  • Religion (7%)
  • Political views (6%)
  • Race (5%)

The study also clearly states that at times the perceived bias "might just be a poorly explained preference." For instance due to previous negative experiences with doctors of other ethnicities etc. What if the preferred professional doesn't have the needed skills yet, will we comply with a patient's request? Quite a murky zone right? It is quite important to address it so that we limit race/ethnicity health disparities, improve health outcomes and at times quite honestly save lives. Please follow the link to further analyze the said study https://www.webmd.com/a-to-z-guides/news/20171018/survey-patient-bias-toward-doctors-nurses.

Challenges faced by health workers who experience bias

Image result for challenges

  • Disrupts team harmony.
  • It impairs one's self-esteem and self-worth.
  • Risk of hampered relations with other patients.
  • It creates a moral-ethical dilemma for the health worker and organization.
  • Complying and failure to comply can lead to Lawsuits.

.
What can we do?

Image result for solutionsSome of the recommendations from various articles revealed that;

1.  Comply with basic ethical guidelines through; evaluating the patient’s
medical condition; assessing the patient’s decision-making capacity, determine the
patient’s reasons for the request, the available options for responding, and the effect
on the health worker.

2. Try using problem-solving techniques especially if it may end up affecting their health. The techniques include negotiation, persuasion, and, if necessary, accommodation.

3. When such an event occurs it is important to conduct an assessment on the aggrieved staff, conduct a debriefing with affected staff, convene team meetings, conduct an event tracking, data collection, and initiate organizational cultural changes.

4. Being that our in set-up one is more likely to experience ethnicity bias. I would recommend if our work ID tags only displayed neutral names or rather the legal name one felt more comfortable using. I believe this would limit some awkward conversations we often get bombarded with.

5. Put more emphasis on educating the health workers on their rights and roles and have more organizations creating policies that also protect the health worker.Please follow this link https://lilylovelong.blogspot.com/2020/01/change-must-come.html.

In conclusion, we need to continue generating difficult conversations. Change can only occur when we openly declare the sad truths and deal with them. For


Image result for patient prejudice quotes